alliancetocure.org Email Addresses and Contacts - KazanSEO

The website is about an organization called the Alliance to Cure Cavernous Malformation. Their mission is to improve the lives of people affected by cavernous malformations (also known as cavernomas or cavernous angiomas), a type of vascular abnormality in the brain and spinal cord. The website provides information on their goals, programs, funding priorities, and team members including the board of directors, scientific advisory board, and medical advisory board. They have a patient registry to collect data on individuals with cavernous malformations and advocate for legislative support at national and state levels. The organization also collaborates internationally with organizations and provides translated materials for non-English speakers. Various resources are offered such as care guidelines, centers of excellence criteria/application, free genetic testing program codes for patients and researchers. There is emphasis on research funding, upcoming events related to cavernous malformations, an online store, fast facts about the condition, frequently asked questions for both diagnosed patients and those with incidental asymptomatic conditions. Additionally provided are in-depth information about symptoms relating to hemorrhage/seizures/headaches/fatigue/brainstem lesions/spinal co et cetera along with glossary definitions specific to this condition