famigliesma.org Email Addresses and Contacts - KazanSEO

The website is about a research project on spinal muscular atrophy carried out by a group of families with affected children. The website provides information on the activities and projects undertaken by the association, including a national conference for families, newborn screening programs, and initiatives to support research and therapy. The association aims to raise awareness about the disease and provide resources for affected families. Visitors are encouraged to donate or become volunteers or members of the association to support their work in fighting this rare genetic condition.